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Getting a Second Opinion

February 20, 2018 By Larry Creswell, MD Leave a Comment

There can be tremendous value in getting a second opinion. I’m certain about that. At times, though, the process of getting a second opinion can cause unnecessary angst for patients and doctors, alike. It shouldn’t. Here’s my take.

What do we mean by a second opinion?

We’re talking about an additional opinion from a doctor who has not already been a part of things–somebody who did not offer the first opinion. Perhaps that’s obvious. Ordinarily, the process of getting a second opinion involves:

Gathering information (eg, records, test results) that formed the basis for the first opinion for some new doctor to review.
An in-person visit with the second doctor for the purpose of an interview and physical examination.
A discussion with this doctor, where the second opinion is shared with the patient, highlighting the similarities and differences from the first opinion.

Most commonly, we’re talking about second opinions from medical specialists or subspecialists rather than primary care physicians (PCPs).

When is a second opinion helpful?

Here are some situations where second opinions can be helpful. For each situation, I’ve included an example of an athlete-related heart problem.

When the diagnosis is uncertain. Not everything in medicine is black and white. As they say, the practice of medicine is both an art and a science. Sometimes, even when all of the relevant information has been gathered, it’s still not possible to decide with certainty as to a diagnosis. In this situation, a second opinion may help to sort out the diagnosis by bringing additional experience as well as a fresh set of eyes and ears to the problem.

An example. The condition known as hypertrophic cardiomyopathy (HCM) can be a difficult diagnosis to establish. There are known genetic mutations associated with this condition, but only a small percentage of cases can be diagnosed that way. In many cases, the diagnosis depends on the findings from echocardiography, magnetic resonance imaging (MRI), clinical features, and family history. In some athletes, there can be particular difficulty in distinguishing between an athletic heart, simply the result of exercise, and HCM. It’s easy for this diagnosis to be uncertain. In this situation, a second opinion may help to gather consensus about the diagnosis or suggest additional diagnostic testing that might be helpful.

When the treatment carries high risk, is expensive, or is logistically difficult. The diagnosis is settled and the conventional treatment involves a fair bit of risk. Often, we’re talking about a surgical procedure. In this situation, a second opinion may bring clarity to the need for treatment and confirmation that the planned treatment is appropriate.

An example. The condition known as bicuspid aortic valve (BAV) can involve regurgitation (leaking) of the aortic valve as well as enlargement of the nearby aorta to form an aortic aneurysm. When this diagnosis is established in a non-emergency setting and the patient requires replacement of the aortic valve and the nearby aorta, there are often several related, but technically different, surgical options. There are different types of prosthetic heart valves and different types of substitutes to take the place of the aorta. In each of these variations, though, the operation carries a fair bit of risk, is expensive, and can be logistically difficult, especially if operation must be pursued some distance from home. Here, a second opinion can be helpful to be certain about the diagnosis and the need for operation; provide clarity about how soon an operation should be performed; provide additional discussion about the various surgical options, with the advantages and disadvantages of each; afford an opportunity to re-address the amount of risk that comes with operation; and offer thoughts about the expected recovery timeline and return to exercise.

When there are several treatment options to choose between. After a diagnosis is established, the usual next step is to settle on a treatment. For many conditions, however, there can be several treatment options. Ordinarily, doctors like to share these possibilities with a patient and then decide together which treatment is best. This choice might depend not only on the medical specifics, but also the patient’s social, work, family, financial, cultural, or religious situation. But sometimes, even after discussion, it may not be easy to choose the best treatment. In this situation, a second opinion can sometimes be helpful to explain, from another doctor’s perspective, the treatment possibilities along with the advantages or disadvantages of each option. This doctor might well include additional or different possibilities or share the opinion that some of the previously considered possibilities may not be appropriate.

An example. One common arrhythmia problem in athletes is atrial fibrillation, or “Afib.” This is a problem that can be nagging or persistent over months or even years. Once an athlete patient has had this diagnosis established, there are often many options regarding treatment: lifestyle changes like losing weight, stopping tobacco or alcohol use, or moderating extreme exercise; medicines like aspirin, anticoagulants, or anti-arrhythmics; and procedural treatments such as arrhythmia ablation or left atrial occlusion. Moreover, a patient will find that his primary care provider (PCP) and perhaps even his cardiologist may not actually perform such ablation or left atrial occlusion procedures. In this situation, a second opinion might help to review the various treatment possibilities from another doctor’s perspective, and get another take on the advantages and disadvantages of the various treatment possibilities.

When it’s mandatory. Because of various regulatory frameworks, it’s sometimes necessary to get a second opinion before a patient can receive a particular treatment. Regulations at the local hospital level, from insurance providers, or from the federal programs like Medicare and Medicaid may all come into play in this regard.

An example. For patients with severe, symptomatic narrowing of the aortic valve (aortic stenosis), we often recommend aortic valve replacement (AVR). In recent years, a new approach for AVR, trans-catheter aortic valve replacement (TAVR), has become available for select patients. To satisfy requirements of the FDA and the Medicare program, patients must get opinions from two heart surgeons before they qualify for the TAVR procedure. In this situation, the second opinion is essentially mandatory.

When is a second opinion not helpful?

In an emergency situation. Second opinions are usually not logistically possible in an emergency situation. Here, patients must usually rely on the doctors that are tending to their emergency condition, even in the situations I’ve outlined above.
When the patient is already in the hospital. Once admitted to the hospital under the care of one or more doctors, it can be difficult to pursue a second opinion, at least in the common sense. If the condition or situation is not an emergency, sometimes it’s possible for partners of specialists to add their opinion, less formally, about a particular issue.
When two or more previous opinions are already similar. There is a diminishing return with multiple second opinions. When there is already a chorus of similar opinions, it’s likely the next opinion will also be similar. In general, it’s probably not wise to chase after the opinion you want. If you search long enough, you might find that opinion, but remember that there is usually value to consensus among the opinions you’ve received. Outlying opinions should be treated cautiously.

How to find a second opinion?

Ask your primary care provider (PCP). For patients who are fortunate to have a PCP, this may be the best source of a recommendation about how and where to seek a second opinion. Your PCP will know the local medical landscape. In many cases, he may have referred you to the specialist for your first opinion. But he will also know which doctor to suggest next, whether that’s another doctor in your community or one that’s farther away.
Ask your specialist. You can certainly ask the specialist who provided your first opinion. Some specialists will be more helpful than others when it comes to identifying a good choice for a second opinion. You may find that it’s easiest for your current specialist to suggest a partner who might also take a look at your situation.
Do some (online) research. There’s a lot of information online about specialists who you might visit for a second opinion. Perhaps there’s too much information. It can sometimes be challenging to sift through all of this information and make judgements about its quality. You may find that you will need to travel some distance to see a particular specialist. The danger here, though, is in not understanding the medical details sufficiently to select just the right doctor. And sadly, sometimes if you choose the wrong type of specialist, this may not become obvious until after you’ve invested in a visit. Another approach may be to select a large medical institution and have that institution help with finding just the right doctor to see you after they get some information from you and perhaps gather some medical records.
Word of mouth. At first, word of mouth may sound like a great way to find a doctor for a second opinion. Indeed, you may have friends or family that could suggest a doctor that they’ve seen and liked. The challenge here is that it can be difficult to find just the right doctor unless your family or friends have the exact same medical problem that you do.

Doctors get second opinions, too

Sometimes doctors obtain second opinions without their patients even knowing. This is just good practice. In this situation, the process may happen behind the scenes. Your doctor may share your particulars with a colleague to ask for help in settling on a diagnosis or settling on the best treatment. Your surgeon may ask a colleague to join him in the operating room to help decide what to do with an unexpected finding. Your pathologist may “send out” your biopsy specimen to get an additional opinion from a center of expertise. These sorts of second opinions are everyday occurrences.

When to change doctors

We should wrap up with talking about when to change doctors. So far we’ve been talking about getting additional, or second opinions. Most often, this is done with the intention of continuing to receive care from your first doctor. But what if you’d like to change doctors? There’s nothing wrong with wanting to receive your ongoing care from the doctor who gave your second opinion. That’s your decision and your doctors should understand making a change like that. I suggest that straightforward discussion with your doctors is the best way to make such a change.

Finally, let me mention two particular situations where you should consider finding a new doctor:

When you are concerned about honesty, transparency, or communication with your current doctor.
When you have reasonable concern about experience on the part of your doctor, clinic, or hospital.

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A Preseason Check-up (Specifically for Men)

February 5, 2018 By Larry Creswell, MD 1 Comment

This is the time of year I get inquiries about pre-season medical check-up’s. I’ve written previously on this subject, including how to find a doctor in your area. I’m frequently asked, though, exactly what type of check-up is needed. Here’s my take.

Today, let me focus specifically on adult male recreational athletes. I’ll deal specifically with women in a follow-up post.

First, in terms of screening adult recreational athletes for sports-related heart risks, adult men are the group where we might expect to get the most “bang for our buck.” We know that men account for the vast majority of victims of sports-related sudden cardiac death, not only in large populations involving all types of sports, but also in very specific sports such as long-distance running and triathlon. There’s a very real reason to be looking for hidden heart disease in male athletes.

Second, in contrast to women, “healthy” men in their 20’s, 30’s, 40’s, and even 50’s are unlikely to make periodic visits to the doctor (except for injury) and very often do not have a current primary care provider (PCP). It may have been years—perhaps back to high school or college—that many men last had a complete physical exam in some context other than for a musculoskeletal injury, which typically requires a rather narrow focus. As a result, there’s often been little opportunity for discussion between adult male recreational athletes and a healthcare provider about any heart risks associated with sports participation.

Let me share how I would approach a pre-season check-up for an adult male recreational athlete who does not already have a PCP….

Although I’m a heart specialist, here I would need to put on my generalist hat to make the most of the encounter.

I would have 3 goals:

Identify any cardiovascular conditions that required further evaluation or treatment as well as any risk factors for future heart disease that could (and should) be modified;
Make an assessment of the patient’s cardiovascular risks of exercise in order to offer appropriate advice about safe forms of exercise; and
Identify any non-cardiovascular conditions that required follow-up with another doctor.

Before the Office Visit

One of the most important parts of a check-up is sharing what we call the “medical history,” an accounting of everything medically-related that’s already happened to a patient. This would include:

Past medical history (childhood illnesses, adult illnesses, surgical or other procedures)
Immunizations
Injuries
Medications and supplements
Allergies
Family history (illnesses that run in the family)
Personal and social history (smoking, drinking, sexual activity and habits, substance use/abuse, work history, travel history)
Review of symptoms (yes/no answers to a long list of questions about current symptoms).

In addition, I would also want to collect information about insurance coverage, the names and contact information for any other current and previous medical providers, and an outline of an athlete’s current exercise habits.

Depending upon the complexity of a patient’s situation, gathering all of this information could be rather time-consuming. So, in order to make the most of our available face-to-face time at the upcoming office visit, I find it helpful to collect as much of this information as possible well ahead of the office visit. I like to use 2 forms:

A general purpose medical history form such as the Health Care Consumer Questionnaire.
American Academy of Family Physicians Preparticipation Physical Evaluation forms. These forms are used ordinarily for secondary school-based screening programs, but I am fond of the first page of the History Form, which asks a series of questions (#5 through #16) related specifically to heart risk. I ask patients to complete items #1 through #51 on the first page and to discard the other pages.

When I’ve received these completed forms, I would review them and consider the possible need to gather additional information ahead of the office visit such as:

records from other physicians or hospitals
results from any heart-related diagnostic tests that may already have been completed (eg, ECG, chest x-ray, echocardiogram, Holter monitor, stress test, laboratory tests, pulmonary function tests, carotid Doppler studies, coronary calcium scoring CT scan).

Lastly, I would make a determination about any new diagnostic testing that may be helpful on the day of the office visit and schedule those tests, if any, for the morning of the office visit. If I think such testing will be helpful, I would have a telephone call with the patient ahead of the visit to explain the need for these tests.

At the Office Visit

I would plan for an office visit of approximately 45 to 60 minutes.

The first portion of the office visit is devoted to an interview. I generally spend half of the visit time on the interview. We often say that the medical history provides 80%+ of the clues to diagnosis.

First, I ask what motivated the patient for wanting the visit. There are many possible motivations. Next, we would have a chance to review the information that had already been provided about the patient’s medical history. I would take the time to clarify and better understand anything in the history that was specifically related to the heart. We would focus on those history items and on any symptoms related to exercise. I would finish by asking the patient if there were any additional, specific concerns that we should address at this visit.

The second portion of the office visit is devoted to a physical exam. Here, I would offer a complete, head-to-toe physical exam, but with special emphasis on the cardiovascular system. The exam would include:

Measurement of the height, weight, and vital signs (blood pressure, heart rate, respiratory rate, temperature)
Screening neurologic exam
Examination of the head, neck, ears, eyes, nose, and throat
Respiratory exam
Cardiovascular exam (heart, carotid arteries, abdominal aorta, arteries of the arms/legs)
Abdominal exam, including check for hernias
Genito-urinary exam
Rectal and prostate exam, in men older than 40 years
Examination of the skin

The third portion of the exam is devoted to a discussion, or wrap-up. Here, we would discuss my findings from the medical history and the physical exam and my assessment of the patient’s overall and heart health.

For the majority of patients–those who do not have any heart-related symptoms or any abnormal physical exam findings–we would spend some time discussing the utility of screening tests such as ECG, echocardiogram, laboratory testing (eg, fasting glucose, fasting serum lipid levels), or stress testing, along with the advantages, disadvantages, and potential costs. Together, we would decide if any of these tests would be helpful. There is a place for such screening tests, but only with thoughtful discussion first.

For other patients, we might identify some new heart-related condition–or at least the possibility of one. As examples, we might find that the blood pressure is elevated or note the presence of a heart murmur. In this situation, we would talk about what sort of diagnostic tests might be needed to further clarify a problem and perhaps what treatment(s) would be needed for any conditions we discovered. Needless to say, there are many potentially useful tests, depending upon the patient’s circumstances, so we won’t go into detail here. In the case of potential inherited disorders, we might need to consider evaluating other family members as well.

In either situation, if additional testing were needed we would make a plan for getting those tests completed. We would also plan for how I would share those results with the patient (eg, by telephone or during a follow-up visit). I would ordinarily make plans to visit with the patient again to discuss the results of any important testing and to resume with our wrap-up once all of the important information was at hand. If more specialized heart care were needed, I would discuss referral to the appropriate specialist (eg, general cardiologist, electrophysiologist, interventional cardiologist, specialist in congenital heart disease) and, in some cases, I would turn over the patient’s care to that specialist.

Next, we would discuss how the patient’s overall and heart health related to his/her plans for exercise and sports participation. Together, we would settle on a list of activities that would be “safe” and, likewise, settle on a list of any activities that should be avoided. We would talk about potential warning signs of heart troubles and how to be vigilant for these. If the patient required a “doctor’s letter” or some sort of pre-participation form to be completed, we would go over that form together and review its requirements. I often complete such letters or forms and return them to the patient by mail sometime after the visit.

We would then make an inventory of any other medical problems (that were not heart-related) that needed follow-up and work together to settle on an appropriate action plan. Examples of such medical problems could include: colon cancer screening in men older than 50 years, that would require a gastroenterologist visit; eyesight troubles that might best be evaluated by an ophthalmologist; periodic screening for sexually transmitted illnesses, which might best be accomplished by a primary care physician; dental care which would best be provided by a dentist; and depression, that might best be evaluated by a psychiatrist. The list of possibilities is virtually endless; this is why there can be tremendous value in having a PCP.

Before we finish the wrap-up, I would take time to have a discussion about any questions or concerns the patient brought. I usually suggest that patients bring a written set of questions that we can answer these one by one.

Finally, I would make a recommendation about when the patient should next be seen for another check-up. For “healthy” patients–those without chronic medical conditions that require monitoring–I generally suggest a check-up every 3 years for men <40 years old, every 2 years for those 40-50 years old, and every year thereafter.

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Five Questions for Your Doctor

December 6, 2012 By Larry Creswell, MD 1 Comment

At my column this month at Endurance Corner I write about 5 questions athletes ought to be asking the doctor at their next visit.

I’ve written three other articles that address the value of a periodic check-up, how to find a good doctor, and how to deal with the cost of preventive care:

Spring Check-Up

How to Find a Doctor (For Athletes)

Six Tips for Athletes to Reduce the Cost of Preventive Care

How to Find a Doctor (for Athletes)

September 20, 2011 By Larry Creswell, MD 3 Comments

I’ve received a couple questions this past week about “how to find a doctor.” In my area. One who understands athletes. One who will take me seriously. And so forth.

I’ve said on many occasions that adult athletes would be well served by having a primary care physician–one that they could visit annually for a physical examination and then rely upon when health issues arise. Some ideal charateristics of that doctor might be:

1. Located in your community or not too far away.

2. An athlete himself or herself….or at least “athlete-friendly” and “athlete-knowledgable.”

3. Accessible….at the office, but also potentially by phone or email.

4. A good listener.

5. Responsive to your needs.

6. Understandable, especially when explaining medical issues to you.

7. Familiar with medical specialists in your community, if their services are needed.

But how do you find that person? Here are some suggestions:

1. Ask you athlete friends who they see (and like). This is your best bet. Find a fellow cyclist or runner who happens to be a physician….and ask him/her who they’d recommend.

2. If you’ve seen some sort of healthcare professional recently, such as a physical therapist, chiropracter, or orthopedic surgeon, ask who they might recommend.

3. Call your local medical society and ask for a recommendation. Explain what you’re looking for. They should be able to help.

4. If you live near a medical school, call the school’s sports medicine department and ask who they might recommend.

Those are my best ideas. Maybe the readers can offer some other suggestions. If so, please leave a comment below.

Who Needs a Doctor?

November 2, 2009 By Larry Creswell, MD Leave a Comment

One of the most frequent questions I receive takes the form of:

“Should I see a doctor?”

“How often should I see a doctor?”

If you’ve been reading here at the blog, you know that athletes take on special cardiovascular risks just by participating in their sports activities. And for that reason, they should see a doctor before they participate. The hope is that a careful physician can screen for potential underlying cardiovascular problems that might place the athlete at risk. And all of this is on top of the many other benefits that a careful physician might provide.

Here’s what I tell my friends who ask….

Student athletes

For middle school, high school, and college students who participate in athletics, their schools should provide guidelines about pre-participation physical examinations. The American Heart Association has developed guidelines to help physicians carefully screen for underlying cardiovascular conditions. The guidelines are written for medical professionals, so the text may be difficult for others to understand. In short, the AHA recommends that student athletes have a physical examination every 2 years during middle and high school and every year during college. Middle and high school students should have a careful medical history taken EVERY year, even if a physical examination is not performed.

The medical history should ask about:

1. Any chest pain or discomfort

2. Unexplained syncope or near syncope (blacking out or nearly blacking out)

3. Excessive shortness of breath during exertion

4. Previous recognition of a heart murmur

5. Elevated blood pressure

6. Family history of premature death (before 50 years) due to heart disease

7. Family history of disability due to heart disease in a relative younger than 50 years old

8. Family history of specific medical problems: Marfan syndrome, hypertrophic or dilated cardiomyopathy, long Q-T syndrome, or arrhythmias

The physical exam should pay attention to:

1. Heart murmur

2. Femoral pulses (to exclude coarctation of aorta)

3. Physical signs of Marfan syndrome

4. Blood pressure

Any abnormalities uncovered with this checklist should be evaluated further.

Young adult athletes, up to age 35

The AHA guidelines are probably also useful for young adult athletes. I tell my friends in this age group that they should see a physican yearly for a careful medical history and physical examination. The checklist for cardiovascular conditions above is also useful in this age group. This is also the age group where a baseline check on blood cholesterol and lipid levels and routine blood chemistries (glucose, creatinine, etc.) should be made.

Older adult athletes, over age 35

As athletes age, they confront an ever-increasing risk of events due to coronary artery disease (CAD, where plaque builds up in the arteries that supply the heart). A yearly visit to the physician for a medical history and physical examination is increasingly important. This is the age range when it is important, even aside from athletic reasons, that people should establish a long-term relationship with a family or internal medicine physician. In this age group, many female athletes will already see a physician regularly for gynecologic or obstetrical care, but “healthy” men are notoriouis for avoiding the doctor. The physician should continue to screen on a periodic basis for the risk factors for CAD: smoking, high blood pressure, obesity, diabetes or pre-diabetes, elevated blood cholesterol or lipids, and potentially others.

Athletes of any age, with medical problems

My suggestions above apply only to “healthy” athletes….those with NO chronic medical conditions. Athletes with ANY chronic medical condition will need to work with their physician to determine the frequency of visits to monitor those conditions. This will almost certainly require more than a single annual visit to the doctor.